Potted History:)

Dx, Acute disseminated encephalomyelitis following Tetanus Vaccine 2003

THEN

Was Dx with RRMS (Michigan.Aug 2009)

Discontinued Copaxone injections after 2mths and Neurologist visits In April 2010.

It does seem to me that Medical Science, and I use that word lightly relating to MS and it's current accepted Medical treatments (Disease Modifying Therapies) are meaningless in that you can't conclude much if anything from it's research studies to date as evidence-based healthcare because it isn't.

Unfortunately to date those overseeing the healthcare of those of us diagnosed with Multiple Sclerosis have not had our best interests at heart (Knowingly or not).

My conclusion is that all through this process there have been no definitive Dx's ,tests or treatments to address Medically MS.

So on to CCSVI:

Started my own investigations into CCSVI per Dr Haacke's (Physicist) protocols and analysis earlier this year:

1. MRI/MRV/SWI (Michigan) April 2010)

2. Doppler Ultrasound (Barrie Canada, June 2010)

3. Venous Balloon Angioplasty (Maryland. US, June 2010)

I have some kind of Reflux in my IJV's, it appears that there is no stenosis, but that I may have valves or flaps at the base of the IJV's that cause reflux. I have had a slight improvement in my balance, and am now 3mths post angioplasty. Of course no one knows what the natural progression of my illness would be, so this is all spurious debate at best.

The CCSVI movement needs to be and will be accountable with evidence-based healthcare.

I remain supportive of and advocate for CCSVI diagnosis and treatment.