Tuesday, December 13, 2011
Round 2 found my Left Internal Jugular Vein (IJV) 80% blocked and Right IJV about 10-20% blocked, the good news is that I will be able to have follow-up.
Too early to report on progress yet. Will update on that soon when I've recovered post-operatively.
Thursday, March 17, 2011
Good to know that my cognitive skills are on the same line as eminent scientists :)
Saturday, February 5, 2011
Continuing my exploration of life's disturbances.
Research continues into MS/CCSVI/Lyme Disease and so many other possibilities. Given that my initiation into all this was Acute Disseminated Encephalomyelitis (ADEM), I've gone back to square one of the jigsaw.
Have recently had Bronchitis, so took the opportunity to concur some time with antibiotics (doxycycline 100mg twice a day).
Amazing thing is my balance is improving slightly, as is my speech,swallowing and to a lesser extent my fatigue.
Thank you God.
Saturday, October 9, 2010
Saturday, October 2, 2010
Dx, Acute disseminated encephalomyelitis following Tetanus Vaccine 2003
Was Dx with RRMS (Michigan.Aug 2009)
Discontinued Copaxone injections after 2mths and Neurologist visits In April 2010.
It does seem to me that Medical Science, and I use that word lightly relating to MS and it's current accepted Medical treatments (Disease Modifying Therapies) are meaningless in that you can't conclude much if anything from it's research studies to date as evidence-based healthcare because it isn't.
Unfortunately to date those overseeing the healthcare of those of us diagnosed with Multiple Sclerosis have not had our best interests at heart (Knowingly or not).
My conclusion is that all through this process there have been no definitive Dx's ,tests or treatments to address Medically MS.
So on to CCSVI:
Started my own investigations into CCSVI per Dr Haacke's (Physicist) protocols and analysis earlier this year:
1. MRI/MRV/SWI (Michigan) April 2010)
2. Doppler Ultrasound (Barrie Canada, June 2010)
3. Venous Balloon Angioplasty (Maryland. US, June 2010)
I have some kind of Reflux in my IJV's, it appears that there is no stenosis, but that I may have valves or flaps at the base of the IJV's that cause reflux. I have had a slight improvement in my balance, and am now 3mths post angioplasty. Of course no one knows what the natural progression of my illness would be, so this is all spurious debate at best.
The CCSVI movement needs to be and will be accountable with evidence-based healthcare.
I remain supportive of and advocate for CCSVI diagnosis and treatment.
Monday, September 27, 2010
Need to now eat and study humble pie and it is so tiring but probably essential, although I have a research background and can review a certain amount of data, advocacy requires you to go one step further particularly with Healthcare. So I'm completing a short short course on Evidence-Based Healthcare online. I am becoming operational with Advocare Et al.,LLC, (www.advocareetal.com)